We are a registered charity operating in England and Wales. Our organisation was founded by Davin Basi, who has suffered from Visual Snow Syndrome for almost a decade.
Currently very little is known about Visual Snow Syndrome, and there is no cure for the condition. Many people live in fear of the condition for years, anxious and utterly confused as to what is happening to their vision. All of this is compounded by a lack of understanding from doctors and others, who are often unaware of the existence of the syndrome.
We therefore actively raises public awareness of Visual Snow Syndrome to help patients (and their friends and family) quickly understand and come to terms with their symptoms. We also work to raise awareness specifically within the medical profession, where currently Visual Snow Syndrome has no official widespread recognition. We aspire to see a world where sufferers are given a clear diagnosis the very first time they seek medical help, rather than being left in the dark for years.
We see improving our understanding and awareness of Visual Snow Syndrome as just the first step. Step two is achieving the ultimate ambition – finding a treatment for a disease that has destroyed far too many lives. To this end, we proactively seek donations and conducts fundraisers, the monies from which are applied directly to ground-breaking research into the condition.
Click here to read our constitution.
If you have any questions about Visual Snow Syndrome or would like to provide feedback on how we can improve our work, please leave a comment on the forums or contact us at email@example.com. Alternatively, you can write to us at our registered office: 34 Ardeen Road, Doncaster, United Kingdom, DN2 5EU.