Thank you very much for getting in touch! I have also read your post elsewhere on the forum.
My symptoms are relatively limited and the main issue is seeing countless white flickering spots 24/7 with occasional floaters that I suspect are age related and in any event non-intrusive, unlike the white spots. I have been short sighted since the age of 7 and this peaked at 7.5. The short sight has improved over the last couple of years to 6.5, the benefit of getting older! I have become accustomed to the white spots over the years and while particularly frustrating in the dark or poor light, the spots fortunately are not debilitating. I do notice that the spots become more conspicuous and pulsating if I awake from a bad dream for a minute or so. Has anyone else encountered this phenomenon?
My reading of VS on this website and elsewhere suggest that the syndrome features a number of differing symptoms which are not common to all sufferers. It is all too possible then for you not to be affected by the white flickering spots shown on this website but by a whole range of other issues. I recall watching a piece from the conference held earlier this year on YouTube where Professor Goadsby mentions that the symptoms are not universal to all and that is a complication in the research into VS.
I hope that you may find the above helpful. Good luck in getting a diagnosis of your condition and hopefully some peace of mind!!